3/25/19

Today’s blog post is about a day in the life of me.

A typical day for me usually starts at 4:30 am, this is when I get washed up for the day get dressed and go back to sleep til about 8 am. I start my treatment regiment around 7 am, my treatments consist of a nebulizer treatment of albuterol and 3% saline to help open my lungs. This prevents thick secretions and makes it easy for me to breathe. After my neb treatment, I get my cough assist if you don’t know what this is it is a machine that forces air in my lungs because I don’t have a strong enough cough to get my lungs cleared. After I do that, I get an inhaler to keep my lungs nice and open. After my treatments are done it is time to do my exercise routine this consists of me sitting on the edge of my bed and a few leg exercises to work on my core muscles so I can maintain what strength I do have. When that is done I get in my wheelchair and go in the living room and get breakfast. I get another neb treatment at 11 which usually lasts about 30-45 minutes. Depending on what day it is how I schedule my day for example, Monday, Wednesday and Friday I have an amazing cna come in and washes and styles my hair. Tuesday and Thursday I have my awesome occupational therapist come and stretch my arms and I do my makeup with her. Then I get yet another neb treatment at 3 then my nurse and I finish my medical routine and my nurse leaves at 4. After my nurse leaves for the day from 4-10 my mom and my brother take care of me. My night nurse who is the best nurse in the world comes at 10 and receives report from mom, so my mom can sleep and have a break. I go back to my bedroom and have another neb treatment and I get my theravest for 30 minutes which shakes me so my secretions don’t get thick ( doesn’t help at all). Then the rest of my medical treatments which doesn’t end till midnight. Then I sleep for 3 hours and I have leg stretched and my last neb and cough assist treatment. Then at 4:30 am is when I get washed up and dressed for the day.