3/16/19

Having a neuromuscular disease such as sma or spinal muscular atrophy can make life a little bit difficult. Now if you don’t know what sma is here is a brief summary: Spinal muscular atrophy is a rare and debilitating autosomal recessive neuromuscular disease characterized by motor neuron degeneration and loss of muscle strength.
I was diagnosed at the age of two years old this is the usual diagnosis age. My mom noticed I wasn’t making the same progress as my cousin. Such as walking and my fingers were contracted. My mom took me a doctor, therefore, a series of tests were done. They referred us to a specialist where my mom and family were told I had a neurological disease. This shocked my whole family but it didn’t stop us